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Mum called ‘awesome’ for caring for a ‘beautiful’ daughter with a rare condition

A mother from Brazil whose daughter was born with hydrocephalus, a condition characterized by a build-up of fluid on the brain causing pressure and damage to the skull, has spoken out about the cruel names people call her daughter because of her enlarged head.

Despite the negative comments, Adalgisa Soares Alves, 48, says she still believes her daughter Graziely is beautiful. Adalgisa says that when she was eight months pregnant with Graziely, she was struggling with intense belly pain, and after undergoing an ultrasound, doctors confirmed her daughter’s diagnosis.

Graziely’s head was larger than average when she was born and continued to grow long after birth, necessitating multiple surgeries. Although Graziely cannot walk, or speak, and recently lost her eyesight, Adalgisa is dedicated to her daughter’s care, bathing and feeding her with all her love, mum told

The family relies on non-contributory pension payments available to those unable to work due to disability. Despite the financial struggles and negative comments, Adalgisa updates her followers on Instagram (@adalgisasoaresalves) with pictures and videos of Graziely, hoping to raise awareness about hydrocephalus and the challenges families like hers face. She says she will always love and care for her daughter, who was born from her womb and was very much loved and desired.

Rhiannon Ingle
Rhiannon Ingle
Journalist at the Medialinker Group


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